Hi guys, I’ve been receiving some email alerts about “Fast Hidradenitis Suppurativa Cure” e-book/guide. (It’s not free, and I haven’t bought it). Is this the cure that HS sufferers are waiting for? More »
I’ve been receiving some email alerts about “Fast Hidradenitis Suppurativa Cure” e-book/guide. (It’s not free, and I haven’t bought it). Is this the cure that HS sufferers are waiting for? Of course this got me curious. Those with HS are desperate, and probably a number of people have already bought this. It would be bad if someone just puts up this e-book for a quick buck.
Now from my initial research, it is an e-book by a woman named Therese Williams. I searched for it on google, and most web results were somewhat ‘shady’ for me.
An easier way to search real reviews is by searching through discussions/forums, and I found the below information in mdjunction and dailystrength. Thank goodness those sites have info about this e-book. I just posted their feedback below, so just read on:
I also suffer from stage 3 HS and have since I was very young. It has been such a horrific journey for me but have found a few things that have helped to lessen the severity of my outbreaks and for me that is as good as being cured in my eyes. I know that I will continue to suffer with this disease but I can make it better and easier to live a normal life and that is ok with me! I have tried every diet imaginable and have used every cream/pill/ infusion offered and am highly unsatisfied with them all… I do not put any stock in “cures” anymore and stick to things that offer some relief. I have purchased the book and eagerly read it hoping that I would learn something new and would find my miracle cure only to find that I have a smaller bank account lol.. Wink it is definitely not worth the money in my opinion but with that said, different people react in different ways to things so what does/does not work for me may be the opposite for someone else. I have dramatically changed my diet to be healthier as well as started taking biotin and coconut oil and I bathe everyday with timewise cleanser and have seen dramatic results in the frequency of my flare ups. I still look like an overgrown road map but the sores are not as prominent and that is as good as good to me. I loved my results so much that I will not let myself get below half a bottle of the biotin or the coconut oil and I had trouble getting my cleanser when I needed it so I signed up to sell it so that I would not run out! If I miss a day or two of the supplements and have run out of the cleanser and have to wait for it to ship then I end up with twice as many flare-ups… I am not saying this will work for everyone but it has given me back my sanity and I have a more active and normal life. I was even able to go to the beach this past week and wear a bathing suit without feeling like a complete monster!!! Anyway, in my opinion do not waste your $ on the book unless you think you should! There is nothing new in there that you probably do not already know!!
I tried her book thing and it wasn’t that helpful but definitely put my on the right track. what she does recommend in the book is how to basically eat healthier. That got me thinking that HS is due to what I’m putting inside my body. It has been 7 months now and I’ve only had 2 major cysts. Let me tell you what I did. I started doing a lot of online research and found out about these compounds called alkaloids that are contained in certain foods called “nightshade foods”. The most common nightshades are potatoes, tomatoes, peppers, and eggplant. I’ve avoided them and now my life is new and improved. I swear… it’s like a miracle. Now, a lot of people swear on a dairy-free diet, etc. But I swear on a nightshade-free diet. Anyway, the way to find out which foods are the main trigger is to visit Rob Wolff’s Paleo diet (for auto-immune diseases) on google, and follow his directions I wish you the best!!!!
by no means does it cure everything within 3 days, however I have noticed that the pain is not as severe, I think i paid 39$ for it so I thought I would give it a try. The first part of the book just gives alot of info which i already knew. The best part of the book is near the end. Also if you read a post titled “doing much better” which was posted by jeanette she has ALOT of great suggestions as well. What im finding in doing my reading is this desease really has no cure, and its strongly related to changing our eating habbits and changing our diets. ie no wheat, dairy, limited red meats, SUGAR is a big no no. etc. o_O
his follow-up post:
” Ugh! Hey group. Just wanted to passon some info, the book “fast HS Cure” is not standing up to its big statement … getting rid of pain within 3 days. I have tried it since Saturday and my pain is crazy! I had an apt with a general surgeion @ the rqst of my Derm Dr. and he stated 1st.. the infection is crazy and 2n, he is not confinced that once infections are gone, he would suggest sugery, as its known to show its’ ugly face in other areas/regions. On a side note, any suggestions for pain would be appreciated. cheers! “
So these reviews are the ones I’m looking for. Basically, from the reviews, the e-book is all about eating healthy, and having a healthy lifestyle.
If you have done a deep(er) research about HS, then quoting from kennysmom309 above, “There is nothing new in there that you probably do not already know”.
I guess it’s useful for those that want a quick and done-for-you info-pack about HS and diet/eating healthy.
Tip: I’ve also been reading about paleo diet and HS, and there are a number of actual/real HS sufferers that gave it their thumbs up.
Also, have you bought the e-book? What are your thoughts about it? Just comment below.
For HS sufferers who have moderate to severe symptoms, surgery is often recommended. The reason for this is to remove the lumps on various parts of the body to reduce re-occurrence. Surgery for this condition generally involves a broad surgical removal of the affected area as well as other types of skin reconstruction.
All of these resolutions are intended to reduce the rate of re-occurrence of the lesions among patients suffering from severe conditions of Hidradenitis Suppurativa.
(Some HS armpit surgery)
The next thing that must be determined, is when the best time for this type surgery?
It is also important to note that antibiotics as well as other minor surgical procedures are necessary to insure that the patient is stabilized, and the acute phase of the illness is brought under control. This may involve draining the abscess correctly. This may involve a broad surgical excision being initiated at this point.
There should also be a complete surgical reconstruction plan in place, to make sure that the surgery will reduce the re-occurrence of the condition.
Additionally, it is important to insure that there will not be any infections or other complications after the surgery is performed.
Kinds of Surgery for Hidradenitis Suppurativa
There are a number of different surgical treatments that are available. Each of these can be used, depending on the patient, and the severity or extent of the condition. The following are some examples of the surgical treatment:
Broad Scale Excision: This usually involves the removal of affected tissue. Patients who are suffering with stage 2 or 3 of HS are encouraged to have this type of surgery. The patients with stage 2 HS can have the sinus tracts removed, but for those patients with Stage 3 HS, it is usually necessary to have more extensive surgery due to the nature and size of the areas affected. The scaring is usually more extensive as well.
In broad excision operations, there is always the question regarding providing appropriate skin coverage.
Although allowing the area to heal by use of secondary can be an option, especially in perianal areas. An application of a divided thickness skin graft may be done following the surgical procedure. This procedure allows for better coverage of large area wounds and significant healing problems with wounds of this nature. Skin grafting around or near the anal area is not recommended as there is a serious risk of stenosis developing. Finally, despite that large area of excision it is possible to attain complete closure by elevating the entire area until the complete closure is achieved.
Incision and drainage. This involves lancing and draining the infected matter from the abscesses. Patients with stage 1 usually have this done and then it is followed with antibiotics.
Carbon dioxide laser treatment. This type of treat is not widely used in many hospitals. It involves leaving the wound area open to the air after the tissue has been vaporized.
Radiotherapy. This is another new, innovative treatment that is not widely used in hospitals, but is considered to be effective.
These different types of surgical treatment can be helpful in many of the cases of Hidradenitis Suppurativa. This is considered to the most efficient way to deal with these problems. Much however depends on the patient and the type surgery that would be the most beneficial to them in their particular case.
I’ve been reading a lot lately about smoking and HS, and found out about this actual study. Great to read that an actual study has been done about HS and smoking. Hope to see more HS awareness, experiments, and cure.
Cigarette smoking as a triggering factor of hidradenitis suppurativa
- König A, Lehmann C, Rompel R, Happle R.
Department of Dermatology, Philipp University, Marburg, Germany. email@example.com
From the exceedingly high rate of smokers among patients with this condition we conclude that cigarette smoking is a major triggering factor of hidradenitis suppurativa. Remarkably, the disease can be categorized as a smoking sequel that is neither of vascular nor neoplastic nature. Because familial occurrence was rather rarely reported, and because an environmental factor in the form of cigarette smoking appears to be of crucial importance to trigger the disease, we assume that the genetic basis of hidradenitis suppurativa is polygenic rather than mendelian. Smoking cessation should be encouraged particularly in patients with hidradenitis suppurativa although it is unknown whether this improves the course of the disease.
So, smoking is a major triggering factor of HS. Stopping of smoking is encouraged in HS patients, but no study yet if this(stop smoking) will really improve the HS condition.
There you go guys, a good find and a good read.
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According to Dr. Seth Forman, the use of TNF-alpha antibodies to treat hidradenitis suppurativa has been successful in his patients.
It is also important to find out your HS triggers. Luckyanjyl from dailystrength shares her discoveries of her major triggers, like dairy products, chocolate, gluten, heavy greasy foods, pasta, pineapple, cinnamon, tomatoes, alcohol, etc.
She also shares some of her lifestyle habits now. Check it out:
Give some love and support for Ronnie who will be going through a surgery this August 30.
To recap the mdjunction thread:
- Any surgery is scary, but it can help with HS, and it can give years of remission.
- Those who had groin surgery & staples/stitches said that the discomfort is only minimal. Their issue is on how to stay still after the surgery(recovery).
What are your thoughts? Do you think a dating site for people with HS and other skin conditions is needed?
I honestly think there needs to be a dating site for those with HS and other skin disorders and things. That way it’s not a issue finding someone who understand because they’re going through it too and both can support each other. And also know not to take it personally if one isn’t particularly in the mood for sex because they’re draining a boil or are in a lot of pain at the moment.
I did a quick google search for HS dating sites, and I found one below(although the dating site only returned a few profiles having HS):
It’s a couple of weeks ago that I read in a blog about Paleo diet helping out with easing HS. It seems that there may be a truth in it, as there are a number of HS people that have used the program, and reported some success.
Take note, Paleo diet involves a LIFESTYLE change. You’ll need to stay with this probably forever(if it really does improve HS), or if a new breakthrough is made for hidradenitis cure.
HS sufferers who tried Paleo cut their nightshades completely.
The guy who wrote the article, he used the guidelines and he discovered all he had to do was cut out all nightshades completely from his diet (Google: list of nightshades) and he said it worked for him and his HS hasn’t flared up in a long time. He is also Paleo like me. And so far I am seeing the same results as him. I decided to go his route and test it for myself and sure enough, I haven’t had a flare up since I cut nightshades completely from my diet about two and a half weeks ago. I agree, more time is needed to be completely sure but so far so good. It’s looking promising. I will definitely make updates on this if anyone is interested.
Studies are being made for a hidradenitis suppurativa. In the link below, a study is made on the effects of anakinra (an IL-1 receptor antagonist) and golimumab (a TNF-α-neutralizing antibody) – I don’t know what the heck these are. But anyways, the study failed.
Elevated levels of IL-1 have been demonstrated in HS lesions. Here we report for the first time on the sequential treatment with anakinra (an IL-1 receptor antagonist) and golimumab (a TNF-α-neutralizing antibody) of a patient with severe HS and with comorbid psoriatic arthritis. Although adalimumab and golimumab were efficacious in improving arthritis complaints, both failed in improving the severe HS of our patient. Eventually the patient underwent radical excision of the inflammatory lesions and fistulas.
photo from – from http://www.flickr.com/photos/55158656@N06/6938248587/
The more I research and read about HS, the more I’m shocked that LOTS of people are living with HS, with even more people not knowing about it.
Here’s a HS sufferer’s speculation that about HS and obesity; and about exercise!
The Catch-22 about this disease is that obesity makes it worse… but exercise also makes it worse! It’s degenerative, so it only gets worse as you age.
Here’s a sufferer that is using Emuaid ointment – It’s still too early to tell if it really works.
Hello I have HS all over my jawline and under my chin and I’ve started to apply the Emuaid ointment on my face, it seems to be helping, its only been under a week though, already seems like its helping, Buy it! i believe its a revolutionary breakthrough in skin care.
Posted on 05/02/13, 02:14 pm
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