Hi guys, I’ve been receiving some email alerts about “Fast Hidradenitis Suppurativa Cure” e-book/guide. (It’s not free, and I haven’t bought it). Is this the cure that HS sufferers are waiting for? More »
Best Laser Hair Removal Treatment for Hidradenitis Suppurativa – LHR Kills the Hair Follicles and Helps HS
For people having Hidradenitis Suppurativa, going through laser hair removal(LHR) is an open option to them. An issue when going under surgeries is the cost. Some HS patients are fighting against their insurance to shoulder the expenses. LHR kills the hair follicle. Below are feedback from people with HS that have undergone laser treatments.
From crystal 08850:
I spent $1000 on professional laser hair removal and it DID NOT work for me. I was very upset because it was so expensive!
- Didn’t work on him/her
– also expensive
My surgeon mention it to me, so i met with a dr. a month ago and had my first session and so far so good. I go back next month for session number two, but our thought was if you kill the hair folicle then maybe the cysts can’t form?
Hi, well my overall condition would be considered stage 3, but the HS is pretty new to my underarms, about two years now. Personally I would say it is mild/mod in the underarm area, I’ve had several cysts removed from each armpit before I started the laser hair removal. I don’t know if you read it in my previous posting, so I will repeat it, they say it takes 3 treatments of LHR for the underarm area, I’ve had one so far and it has already been amazing. I go back in two week for my second treatment. The bonus is it also helps with old scars! Woohoo!! So for me, it has been a blessing. I hope this helps!
- had her 1st session
– her HS is considered to be stage 3
– had cysts removed from armpit before going through laser hair removal
– For the underarm area, it takes three LHR
– LHR also helped with her old scars
– Very positive results for her
LASER treatments have worked WONDERS for me and other HS sufferers. problem is that insurance dosnt cover it usually and it is expensive. there are several lasers that have been shown to be effective. i forget the first one i tried that helped, but the second one i tried was a carbon laser, and i have been in remission for a year now (with a few MINOR outbreaks).
- had a carbon laser treatment
– Remission for a year, so positive result
From jconnors :
I have tried every doctor and even had radical surgery to remove a large portion of skin from both thighs. Now I am going to John’s Hopkins once a month for laser hair removal in hopes of scarring the hair folicle. Right now it seems to be doing pretty good and only have flare ups right after the laser treatment. I am wondering how this will be when summer comes.
I have taken off the last couple years of riding and now I am learning to ridesaddle in due to trying to relieve some pain that I have in one ankle.
- doing pretty good so far
– He only had flare-ups after his treatment.
From aenigma20, her post before treatment:
I’ve wanted to do laser hair removal for quite some time because I think it will help with my HS. I’ve read several posts of people asking other people if they’ve had it done, and even some people that said they are going to do it. But I didn’t really find anything out there that someone said they’ve done it and these were the results.
So I decided to go ahead and try the laser hair removal. If it helps me get one less lesion, then I guess it’s worth it. If it does nothing for my HS, then at least I’m given a hair free area that I can start doing cross friction on to reduce the scarring.
This is where I’m tracking it if you want to look at pictures or see how it’s going… http://aenigma20.blogspot.com/
After her treatment:
So it’s been almost a year since my initial post on this topic. I had started to forget that I had HS and something reminded me of it today, so I wanted to post an update. I’m considering myself in remission now, it’s been almost 6 months since I’ve had any issues with my HS!! You have no idea how happy it makes me.
Of course not all options work for everyone, but laser hair removal along with the right birth control (Seasonique) has been working for me so far. I’ve documented my journey through the laser hair removal and the different things that have and have not worked for me. It’s at http://aenigma20.blogspot.com/ if anyone is interested.
- positive results, in remission now
– he blogged about her experience at http://aenigma20.blogspot.com/
From a professional, with forum handle of laserwill:
I have lasered quite a few people with Hidradenitis at the Royal Free Hospital in London and they mostly find it helpful, not curative but often more helpful than other things they have tried. I also think it is safer than most medication and well worth a try. I think if I had HS I would be trying to get rid of as much hair as possible by laser and as early in the disease as possible. I hope other people on this forum can contribute from personal experience.
- Lots of HS sufferers find laser hair removal helpful, though not curative
– He also think it is safer compared to other medications
– Laser hair removal is worth a try
LHR only beneficial when there is not much scarring, or when in early stages:
Yes laser hair removal has been shown to have beneficial effects in Hidradenitis Suppurativa in recent years. However this works best in early cases where there is not too much scarring since this scarring makes it hard for the laser to target the hair follicles. Sittings are done 4-6 weeks apart and it takes 6-8 sittings to see a noticeable difference. Various lasers can be used for this – e.g Diode laser, Nd:YAG laser. For cases with a lot of scarring surgery is the best option.
- His opinion – LHR is beneficial for Hidradenitis Suppurativa but this works best during the early cases or stages. If there is too much scarring, it may be hard for the laser to get the follicles of the hair.
The best person to provide you with antibiotics is of course, your doctor. What he will give you will be based on your history(medical and treatment history), the stage of your HS, and also on your preference.
If the lumps are oozing with pus, red and painful, your doctor may prescribe antibiotic tablets for a 2-week course. Antibiotics are also given for suppressive treatment(symptom-free period) which can last up to 3 months.
In some HS patients, long term antibiotic use also wasn’t ideal – These work for a short time. These are also used not to treat the infection, but as an anti-inflammatory.
Here are some antibiotic options:
1. Rifampicin & clindamycin combination – for 2 to 3 months. This helps with the HS lession. It can be for long term and effect can be long lasting. Your doctor may also need to monitor your liver function.
Here are side effects:
2. Oxytetracycline, Minocycline and Erythromycin are also anti-inflammatory which are also effective to some degree.
3. Amoxicillin and Flucloxacillin can also be used for secondary infections. They have the same side effects as clindamycin and rifampicin.
- Oratane 20 mg for 3 months
– 6 week course of topical creams and antibiotics
I’ve been diagnosed with HS just last week. It only took a second for my doctor to realize what disease it was after looking at my armpit lesion. I’ve been prescribed a 3 month course of Oratane 20mg, a 6 week course of antibiotics and topical creams. I have seen a slight improvement since I began the medication.
- antibiotics didn’t work
Antibiotics and ointment doesn’t work for more than a week. Dermatologists haven’t helped. SOMEONE PLEASE HELP ME!
After seeing different doctors for years with no help I ended up diagnosing myself. Printed out all the info I could and took it to my doctor who replied “oh yes, I think you have this”. She put me antibiotics and after 5 years on them there was really no relief, so I stopped taking them.
Hidradenitis Suppurativa In The Armpit – Shaving, Surgery, Recovery Time and Herbal Treatments Information
HS begins with 1 lump and persists through time. This lump may then spread and worsen, and may affect different areas of your body with the armpit a common area. They fill the sweat glands and armpit with pus and also form cysts which may surface and then burst. Some have it mild. These mild ones can be treated DIY through different skin care measures. Other HS sufferers feel severe discomfort. What happens for some is that it first starts off as a small lump, then it becomes enlarged as the infection grows, becomes red and tender.
It is generally recommended to stop shaving whenever the breakouts occur. It can lead to irritation of the skin.
YOu can also try out an epilator, which is a device for plucking the hair and is available at any good electronics store.
Another option is laser hair removal, which is more expensive.
Some HS armpit pictures:
HS is not contagious. You can’t pass it to to other people.
Here are symptoms that may need to have a professional look at HS:
- symptoms and lumps frequently recurring
- severe discomfort or pain
- no improvements over time(for weeks)
- symptoms re-occuring after treatment
Here are Surgery and Recovery Info
Going under the knife is a scary process for most HS patients, especially if it’s their first time.
What do you expect?
How about the recovery time?
How painful is it after the surgery?
HS Armpit Stage 1 Surgery
Most likely, this is done with incision and draining the pus.
HS Armpit State 2 / 3
This surgery is more extensive – larger and deeper area. This involves removing the affected area. The infected tissues are removed. Plastic surgery or skin graft may be needed here.
Below are some tips that we can share if you’ll go into surgery:
- Be sure to get the pain medicines when you get home. Better yet, get it on the hospital. Some are on percocet, and some on morphine – depends on the pain level. It might also be very painful sleeping in a bed. Try a recliner and cover it with clean sheets.
- Some users are also using Hibiclens as their soap.
- Each surgery is unique, so it is also best that you ask your doctor on what you should anticipate.
- Ask about how to avoid the pockets of the extra skin. Plastic surgery might be also another option for a follow-up incision – This will help you look more normal and natural.
- The HS lumps can still come back! So follow the after-surgery instructions too. Like if you have drain tubes, be sure to strip and empty them diligently
- Lastly, take it easy when you are in recovery. Don’t push hard. Listen to your doctor.
Foods / Diet
Eat foods that have lots of Vitamin C, A and Zinc. Also eat meat since animal protein is good when healing the wounds.
You can also put Tea Tree Oil right on the lesions. This helps with the itching and the pain, and keeps the flares in check. Also have an instant hand sanitizer with aloe vera for the infection.
From Leah Day:
- If you are obese, lose weight
- don’t smoke
- loose-fitting cotton clothing
- avoid perfumes and anti-perspirant on the affected areas
- Minimize sweating and heat exposure
Here are some natural and herbal products that help with HS:
- coconut oil
- black pepper
- Apple cider vinegar
- Omega supplements
- Tea tree oil
Each HS sufferer also has his own list of HS triggers, but here’s a general list of foods to avoid:
This post also contains more information on how to use turmeric, apple cider, omegal oil and others : http://www.earthclinic.com/cures/hidradenitis_suppurativa.html
Vicks isn’t really recommended for use on broken skin, but as you may know, HS sufferers are desperate and will try about everything. It if works, then great. Stick with it!
First of all, here’s a list of the ingredients:
- eucalyptus oil 1.5 %
- turpentine oil 5 %
- camphor 5 %
- levomenthol 2.75 %
- nutmeg oil
- cedarwood oil
- white soft paraffin
Vicks is a topical analgesic. The menthol in it draws the HS stuffs out. Lots of hidradenitis suppurativa sufferers use it on broken skin, and it sooths the painful bumps.
As soon as bumps appear, apply Vicks on it until it is drained. It can also hasten the draining/bursting process and also has a pleasant smell. It might also sting a bit on other areas like the groin area.
Are you using Vicks? How is it working for you?
Roaccutane is used for acne sufferers and may be prescribed by your GP. Although different people have different reactions to it, for most of our research on people with HS, Roaccutane didn’t work.
Here’s a story from Sheryl, age 33 and has HS, who was prescribed roaccutane for her facial acne: (It worked okay for her)
My acne cleared up within 3-4 weeks, the side effects were less and were tolerable after 6-8 weeks. I am still taking the Roaccutane, I am never clear of the HS and my flare ups seem to occur every 6 months.
hs-usa.org says that roaccutane is not effective for HS patients, although it may help for those who have co-existing acne.
Here’s a summary of users feedbacks:
- Did nothing for me, short- or long-term
- Couldn’t tolerate it
- Helped my Acne, not my HS
- Got worse
- Headaches from hell, swelling of the optic nerve, and anxiety
A lot of the feedback were negative.
Some side effects:
- dry/cracked lips and skin
- being depressed
- muscle ache
It is also dangerous for pregnant women.
Still, it may work for you! Just know and be informed – watch out if side effects gets too bad. Also prepare Cetaphil for your skin on hand, don’t be exposed in the sun, and also prepare aquaphor for your lips and nose.
Now this is a very sensitive topic. You and your partner may change minds constantly about this.
For those with HS and having a child, it always comes up on their mind:
- “What if I pass it on?”
- “How will they live their lives with HS?”
Some also think that bringing someone into this world and be cursed with hidradenitis suppurativa is a high injustice, and really so sad.
Beat HS, and don’t let it win!
I do believe that as time passes, more people will know about HS, study it, and will have a treatment for it! Science is making huge progress every year. Scientists are now even studying and doing research on the genetic level.
Have faith in your child.
Chances of Passing it On
- It is a hit and miss. For most people, HS first appeared when they are already adults. Most children don’t show any signs yet, although HS can come at any point of a person’s life. Some doctors also think that it can skip a generation.
- It is not a hundred percent that you will pass this disease to your children.
How about your parents?
- Did they know about HS when you were still a child? How did they raise you?
- If your child does indeed grow up to have hidradenitis, then they’re lucky since you are there to guide them.
How about adoption?
If you are open to adoption, then this might be a viable option for you.
Don’t let it stop you from having babies!
There are a lot of HS sufferers who have attested that turmeric has helped with their flares/lumps. Turmeric is a spice and is the same family of ginger. It has anti-inflammatory agents and anti-oxidants. Turmeric is also one of the world’s most studied spices because of its health benefits. People with HS are also desperate for something that can lessen the flares, bumps and the its nastiness.
Now I’ve done research about Turmeric and HS, and you’ll find out below:
- the range of its effectiveness
- any clinical studies that might be going on right now
- Who should NOT take it
- Should you take the pills form?
- how to make a paste and preparations
- Side effects you need to watch out for
- And other things you need to consider
How effective is it?
Lots of HS sufferers who have tried turmeric says that it does work, or their flares have really died down. According to those who have tried turmeric, it does help alleviate the problem, but it doesn’t fix the problem. It can make the flares less nasty, painful, nasty, and it can reduce the re-occurrence. It also may not work for everybody, but it is definitely worth taking a shot, right?
Are there any Clinical Studies?
It is important to note that there are no published studies.
Who should NOT take it?
- - Pregnant or those who are breast-feeding should consider going to the doctor first
- - For pills or capsules, those allergic to ginger or yellow coloring.
- - Turmeric is also not recommended for people that have gall bladder problems.
Pills, capsule or the spice?
Some people have had success with the capsules and pills, and others had success with the actual spice. Test it out. Try out which one works for you.
Turmeric spice Preparation:
Note: It is somewhat unpleasant and gross
Turmeric’s flavor is somewhat unpleasant and gross when taking it. Also, when mixing it, don’t stop the stirring since it will settle at the bottom. You can also eat something that you like just after taking the turmeric.
You can make a paste with water. Take 1 tsp turmeric then mix it with warm water. Take this about 2 or 3 times a day.
Different people are having success with different dosages and frequency. You can try 2 to 5 times daily for your first week, then you can decrease it gradually. Play around with the dosage.
You can also mix it with chicken broth. This is great since it won’t taste nasty.
1 teaspoon turmeric
1 virgin coconut oil
1 pinch of black pepper
Mix together the turmeric and coconut oil until turmeric dissolves. Add water based on your liking and drink. The coconut oil helps the turmeric to be absorbed better by the body.
Side effects you need to watch out for?
- Look out for any allergies that occur.
– Taking the capsule after eating can cause an upset stomach.
Other things you need to consider:
Drink lots of water
Try to not miss a single dose. Some people have noticed the lumps coming back after missing a single dose.
If you find this article useful, do help me out also, like our page at https://www.facebook.com/HSGoAway, and share this article at different social networks. Thanks a lot!
For now, there is not much information on the recommended deodorant for those that have HS in the armpits. Some doctors have advised not to use anti-persperants, and some recommend herbal deodorants. Deodorants can also worsen the symptoms if a person has an outbreak.
An HS sufferer should test what works for him/her, and they should try different things until they find something that works.
Here are some suggestions from other HS sufferers:
- Dove Dry
- Germ-X hand sanitizer – Apply in hand, rub together, then put on underarms. If you have open sores, you can experience some stingy feeling
- Tom’s naturally dry deodorant
- Crystal deodorant + Dry-Sol – alcohol based, but it really burns bad.
- Secret with Oil of Olay – For some, this doesn’t irritate and is creamy.
- Plexus Body Cream
- Blue Emu in the morning, then at night, tea tree oil. Tea tree oil helps with the healing and swelling, and the Blue Emu helps with the pain.
- tea tree oil with aloe juice
- coconut oil with some essential oils
- baby powder
Having a relationship(and dating) is a common scary thought for HS sufferers. Should you entertain dating now? Will he/she accept me(and my HS)? Will I grow up and reach old age alone?
rubysue11 from dailystrength.org also posed a somewhat similar question:
How do you start to have that conversation with somebody? hey, I like you, you like me, by the way I have hidradenitis supurativa!! without being sure if i can even pronounce it, I’m not sure thats the way to go about it. do I wait til were about to make love? do I bring it up casually, or do I explain how hard it is for me to tell him about it?
AcoustiCoco4136 replied with:
I’m the type that believes in transparency when meeting someone new. I can’t say that it’s done much positive for me when it comes to dating because HS has played a very large part of the failings of 3 of my relationships. At first, they were ok with it, until they realized it may mean not being able to walk around the beach all day long on the hottest of summer days because of the irritation that can come from sweating and then the constant friction of sweat soaked clothing etc.
melrae01 also said:
With all of that said, ease into a relationship, talk about it often with the person before you get intimate, let him/her see your scars, let him/her go to the Dr. with you, possibly let him/her read info on the internet (after you explain it the best you can) and take the relationship slow and do things step by step. Hang in there!
HS does not define who you are as a person and if someone can’t see past the scars then it is their lost.
I also have a question:
What works for you, telling someone about your HS through facebook/email, basically online? Or do you prefer to tell him/her personally?
Hi, below you can find information about:
- Is HS Disabling?
- Social Security Administration notes
- Can you get an attorney?
- Information on disability cases lost
- US Disability benefits HS discussion
- UK Disability benefits Hs discussion
Do comment below for reactions and thoughts about this article. We really appreciate it.
Is HS disabling?
Yes. Its severity, frequency and duration of symptoms determine if one can receive disability benefits.
Social Security Administration notes
In the US, the Social Security Administration (SSA) recognizes “chronic infections of the skin and mucous membranes” as Skin Disorders under Section 8.04 of the Blue Book. Section 8.06 also describes HS:
8.06 Hidradenitis suppurativa, with extensive skin lesions involving both axillae, both inguinal areas or the perineum that persist for at least 3 months despite continuing treatment as prescribed.
Some have adviced that if you can work, then stay off the disability. But if you really need it, then you shouldn’t stop. Gather all your documents, present all your evidence – e.g. derm visits, ER visits. Lots of people don’t know about HS, even lots of physicians don’t have any idea. It’s also great if you can get your doctor to write that HS has incapacitated you, and that you are in deep pain.
There’s nothing to be embarassed, tell them about everything – How it affects your life, etc.
Can you get an attorney?
It’s also good if you can get a social security disability attorney who understands the condition.
What must your Social Security disability attorney do at your Social Security hearing? He or she must raise the issue of Listing 8.06 and argue that the diagnosis, duration, location, impact, and daily care of your HD impedes full-time employment. Additional legal documentation, as well, can win claims.
Information on disability cases lost
Here are also some information on why many disability cases are lost at the disability application and reconsideration appeal levels.
From ssdrc.com website:
Speaking as a former Disability Claims Examiner, I can state that there are several reasons:
1) Social Security makes no attempt to obtain a statement from a claimant’s treating physician. By contrast, at the hearing level, a claimant and his or her disability attorney will generally obtain and present this type of statement to a judge;
2) Prior to the hearing level, a claimant will not have the opportunity to explain how their condition limits them, nor will their attorney or representative have the opportunity to make a presentation based on the evidence of the case. At the hearing level, of course, this is exactly what happens. And a number of disability representatives will also take such steps even earlier, at the reconsideration appeal level;
3) Disability judges, unlike disability examiners who decides cases at the first two levels of the system, can make independent decisions without being overturned by immediate supervisors–which happens frequently.
US Disability benefits HS discussion:
A can offer this piece of advice: Once you have made the decision to apply get a lawyer. Most will work on contingency for a percentage of your back pay so money isn’t an issue.
UK Disability benefits HS discussion:
Hi. It will be very difficult to get ESA for HS.” Also, “Don’t just fill in the form add written documentation about how this affects your life. Describe an average day. As HS isn’t on the DWP site enclose documentation from the NHS site about the condition.
When I filled in the questionnaire for them I included a printed copy of the internet explanation for the disease and also a copy of my scan results for my back
Any reactions and thoughts about this article? Comment below now.